Showing posts with label kids. Show all posts
Showing posts with label kids. Show all posts

Thursday, September 24, 2015

Autism Spectrum: Your emotions overwhelm me!



Whether you are in relationship with a child or adult in the autism spectrum, you may not realize how sensitive they are to other peoples' emotions.  They may misinterpret them, make wrong conclusions about them, not understand where they come from or what they are called, but many individuals with ASD (autism spectrum disorder) experience them quite strongly.  

Consider this, have you ever had the experience of having something really bad happen to you, and many people run over to you and say how horrible it is, how sorry they are, and what can they do?  If so, you probably have a sense of how it feels to have trouble taking in and balancing emotional input from others.  You might think, "Oh great.  Now I have to deal with my own stress and sadness, as well as the sadness of other people!"  Or maybe you watched a sad movie on TV and you have trouble regulating all that emotional input from the program without feeling the impact for hours or days later.  It's a lot of emotion to "take in" and do something with. 

Individuals in the spectrum can be easily overwhelmed by the emotions of others.  If they are having a conversation with someone who is emotional, they may shut down or feel like leaving.  If their family members are fighting and crying, they are likely to feel a real struggle with this (maybe even moreso than the individuals in the argument).  If you are a spouse or parent interacting with these individuals about a difficult topic, they may miss much of the content of your communication because they are overwhelmed trying to regulate the emotion of it.  I recently spoke with someone with ASD who said, "This is so true... 200% true!!"

Here are some tips to recognize and overcome this barrier:

  • Recognize that your need to get your emotions out may be just that... your need.  It may not serve the actual communication or help the person you are connecting with.  If it is your need, but overwhelming to the other person, find other ways to let your emotions out (e.g., journaling, exercising, bubble bath, music) while still communicating thought content to the other person.
  • Recognize that adding emotional content to your communications DOES NOT make them more compelling to the other person, but rather decreases their effectiveness.  If you want to make sure you're getting your point across, decrease your emotional output rather than ramping it up for emphasis. 
  • Commit to a calm home environment as part of the overall picture of helping your loved one balance their experiences (e.g., emotional, sensory, activity, etc). 
  • Give the other person time to settle their emotions before talking through the emotional topic.  They may need space, quiet, and time before feeling ready to continue talking about something.  

Wednesday, September 9, 2015

Teaching Emotional Control Strategies to Kids with Autism






I recently wrote a blog entry about why losing games can be overwhelming to individuals in the autism spectrum.  Now for a few ideas about helping kids gain emotional control.  These strategies are one step toward calming and teaching emotional regulation.  Consider yourself and your child to be a detective about what helps in what types of situations. 


  • Catching the Meltdown Before It Happens
It is often difficult for an individual in the spectrum to know how upset they are becoming or may become in certain situations.  As the parent of a young child, you may need to watch for signs and triggers ahead of time and teach your child more about his triggers and emotions.  You might say "You are angry right now" or "It has been a long day.  You need some quiet time."  You may pay attention to your child's schedule to make sure there are not too many difficult things in one day (e.g., don't schedule a school test and a dentist appointment the same day).  

It can be helpful to use pictures to help your child identify how he is feeling (e.g., he could point to green for good, yellow could be "watch out, getting stressed" and red could be "feeling completely overwhelmed").   
  
  • Using Sensory Strategies for Calming
Once your child is overwhelmed, using verbal reasoning and requests is often very difficult and unsuccessful.  It is hard for her to think about how to comply with your commands (e.g., "Get a grip, it's not that bad" or "Stop crying, this is embarrassing).  It is also very difficult to attach words to the experience.  She is likely to be unable to verbally explain what is happening (e.g., "Why are you so upset!  What happened?").  Instead, you could use physical strategies that involve the senses to help her body calm.  Some strategies might include using deep pressure (e.g., bear hugs, pillow sandwiches with your child in between for a nice squeeze, or a weighted blanket), vestibular input (e.g., a ride in the car, being pushed in a swing), visual input (e.g., repetitive visual things like a lava lamp), auditory input (e.g., ear phones with nature sounds or favorite music), joint input (e.g., carrying something heavy, pulling on something), or smells (e.g., essential oils like lavender).  This can help with calming, even when the individual can't use thoughts or language.
  • Time Out for Calming Instead of Punishment
You can teach the child that when they begin to feel overwhelmed, they may need to regroup in a quiet space before trying to solve the actual problem.  Having time away from chaos and strong emotions, can help him let go of some of the stress before interacting with others again.  Some separation can be initially helpful.  In fact, for individuals with ASD who are older, I have even seen people decide they do better speaking to others about difficult things using email rather than face to face.  If this is a strategy decided on ahead of time that actually helps introduce helpful distance and prevent loss of emotional control, it may be very helpful. 
  
  • Have a Calming Strategy that you Practice Ahead of Time
Giving your child direction during a meltdown is often more overwhelming than calming.  However, if there is a calming strategy that the child knows about ahead of time, she can learn to use the strategies piece by piece.  For example, one strategy might be to use the breath for calming, like blowing bubbles or blowing LEGOs across the room with a straw (sometimes blowing out is more calming than deep breathing, especially for anxiety).  The individual may have a basket of things for calming (e.g., squeeze balls, ear phones with music, heavy blanket) or may have a binder with pictures of strategies in it (e.g., pictures of swinging or meditation) that they can then go and participate in.  

You will find that thinking about strategy rather than punishment is more effective and comfortable for you and your child!

Monday, September 7, 2015

Why Losing Can Lead to Meltdowns in Autism

All kids have trouble learning to lose with grace, but for children in the autism spectrum, losing can lead to an all out meltdown.  A meltdown is different from a tantrum in which the child is in control of his behavior but is acting out to achieve a goal or manipulate an outcome.  A meltdown is the moment at which someone is entirely overwhelmed by emotion and decompensates before your eyes.  The emotional moment may last a very long time; children with autism can take even hours to recover.  

Many children with ASD (autism spectrum disorders) have meltdowns in response to losing a game.  Why?  Here are several reasons:
  •  Uncertainty:   Individuals in the spectrum often want things to be routine and predictable.  They have difficulty not knowing the outcome of something ahead of time.  For some kids, if there was a predictable pattern to winning and losing (e.g., I win then you win then I win...), the individual would do better.  But that is the point of the game for most people; the outcome is uncertain and captivates our attention.  What is going to happen?!  For the individual with ASD, the uncertainty is stressful.
  • Concrete: Good vs Bad --Concrete thinking is common in the spectrum as well.  Your child may categorize everything into good or bad, or other black-and-white categories.  As my son was growing, he would ask the same thing of me ("Is that person a good guy or a bad guy" or "Is that a good word or a bad word").  It is difficult for your child to, on the one hand, know that winning is the object of a game (no matter what adults say to the contrary) and also realize she is either a winner or a loser, good or bad.  When she uses all her efforts to get into the "good" category and fails, this is overwhelming.  
  • Fixed Beliefs --Many individuals in spectrum fixed beliefs that have no clear basis in reality.  They may firmly believe with all their being that something makes the team that is playing good or bad.  For example, they may be extremely attached to the blue uniforms of a team on television, and melt down if the blue team doesn't win.  I have heard some kids say, "I don't know why, but I just feel like it is really really important for the blue team to win."  It is common for people in the spectrum to be unable to distinguish what is "really important" and what is not. 

This leads us to the topic of Emotional Control.  You can think of emotional control as part of the overall concept of executive function which is impacted by the center and front of the brain.  For a good description of emotional control, see Dr Dawson and Guare's descriptions in their books at Smart but Scattered Kids.  Executive function is a significant difficulty for individuals in the spectrum, and emotional control is a big part of that challenge. 

People who have emotional control difficulties may have different manifestations.  In the presence of overwhelming situations,  they may:
  • Shut down (withdraw, lose their words, freeze, be unable to act)
  • Act Out, Explode, or Meltdown (pushing someone away, crying, yelling)
  • Become very anxious (significant fear, worry, and upset)
Because they are less able to manage their own emotional and physical experiences, they often become overwhelmed by emotion and unable to function appropriately through the challenges.  

It is important to understand that, for these individuals, the difficulty managing emotion after losing a game has a neurologic base and cannot be generally managed hearing someone say "stop it" or "don't be a cry baby." 

Some ideas for managing these situations coming up in my next post!

Monday, April 20, 2015

Nerf Birthday Party: 9 Year Old

When my son told me he wanted a nerf birthday party, I immediately began thinking of games and targets we could assemble around the house and yard to make it fun.  He then told me that he didn't want any of that... he just wanted to play nerf wars with his friends... no gimmicks!  OK.  But he also let me know that he wants the birthday to feel special and fun.  My assignment... to make a nerf party that was fun but not gimmicky!

I ended up ordering safety glasses for the shooters in a variety of colors.  I also printed out "target" symbols on colored paper stock, cut out the targets and arranged them on the gift bags and table.  The gift bags also included a bundle of "ammo" and "gunpowder (Pixi Stix candy)".




Then I bought some yellow streamers and put them around the house like Caution police tape.


We had an array of guns and ammo, and the kids also brought their own favorite nerf guns as well. The cake had 9 nerf bullets arranged like candles (I put a toothpick in the cake and then put the bullet on top of the toothpick so it would stand).



Such great kids and a great party!  It felt just "grown up" enough but still fun, festive, and ... just a little bit crazy.

Friday, December 12, 2014

Motor Sequencing and Planning: Games for Kids

My 8 year old son has been in Occupational Therapy off and on for many years related to his autistic spectrum diagnosis.  One of the things he often works on is motor sequencing and motor planning.  This involves his ability to put multiple movements together without having to think of each step first.  This can be an area of difficulty in the spectrum, and for many individuals with other developmental conditions and features as well.

Instead of just doing exercises, it is fun to use games that require sequencing. 

Lately, we have been having fun with hopscotch:

We are in mid-winter here, so we actually are using the inside tile floors as a grid for our footwork.  We often don't play exactly by the traditional rules.  We may change up the order of the feet or the number of tiles in between the feet.  We may sing a rhyme while we do it, or try to name colors as we jump.  There are so many possibilities, and it is fun to have him involved in making up a sequence that we try next.

We have also started play hand clapping games:
Remember those good old games where you would chant or sing-song while clapping in a variety of sequences.  They are great for this skill, and can be made as simple or complex as needed. I have been remembering some oldies but goodies, and introducing my son to this style of game.





Here is a great website for ideas and rhymes.  Check it out!

Fun Clapping

And last but not least, stair hopping.

If you have carpeted stairs, try doing hopping sequences up and down the bottom stair.  For example, your child can try right foot up, left foot up, right foot down, left foot down (10 times).  If you have an older child, they may have the strength to hop up with both feet and down with both feet.  Then you can combine for extra difficulty: up with both, down with both, up with right, up with left, down with right, down with left, and repeat. 






Wednesday, December 3, 2014

Holiday Home Decoration Idea: Kid Friendly

My parents have a large window facing the street in front of their home.  When we were growing up, we would tape a message cut out of Christmas wrapping paper: "Happy Birthday Jesus."  Each letter was cut the size of one of the small windows, and when assembled, could be read from the street.

This year, my parents made a Thanksgiving decoration for the window.  They put pictures of family members on each limb of the Thanksgiving tree. 


This is a great idea for decorating your home for the holidays, either in a window, or on a wall in your home.  Little ones can help with the cutting and taping of this project.  You can use many different types of paper such as brown shipping paper, construction paper, tissue paper, or holiday wrapping paper to make your design. 

For Christmas, you could do an idea similar to the Thanksgiving tree, using a Christmas tree and putting family pictures inside the presents under the tree. 

Be creative this year, and involve the kiddos in some great family traditions!

Tuesday, July 29, 2014

Using Technology to Create Social Stories for Children: Adobe Voice

In the past, I have written about using social stories to help children with autism or anxiety deal with apprehension about the unknown or future events.  My previous post was about a birthday party, but social stories can be created for your child about ANY theme such as starting school, night-time routine, going to the dentist, or traveling.  The stories can also be created to help kids learn a new skill such as how to say "I'm sorry" or how to introduce yourself to someone new.

I have recently discovered the free app by Adobe called Adobe Voice.  This app can be used to make stories come alive with icons, photographs, text, graphics, and music. 

Here is a link to the video I created about a birthday party: Birthday Social Story

In this story, I used icons, but you can insert pictures of the child's actual world.  For example, for a social story about the first day of school, you can take photos of the actual school, the teacher, the classroom, his/her bookbag, the school bus, etc and make a video story for your child to watch.   Your child can even help create the video themselves.  They could record their own voice talking about the pictures that are uploaded. 


What is your story?






Monday, July 7, 2014

Suddenly: Luke 5 (5-7) Devotional


 


 

 
Excerpt from Soul Cries devotional, copyright 2012
*2013 National Indie Excellence Award Finalist*

 
Suddenly
 
Luke 5:5-7 (The Message)
Simon said, “Master, we've been fishing hard all night and haven't caught even a minnow. But if you say so, I'll let out the nets.” It was no sooner said than done—a huge haul of fish, straining the nets past capacity. They waved to their partners in the other boat to come help them. They filled both boats, nearly swamping them with the catch.
 

When you are the parent of a child whose needs are complex and difficult, the days roll into months and years. The amount of effort can feel so tremendous compared to the amount of lasting gains. We may cry out to God, “We’ve been hard at it during this night season, and we haven’t caught even a minnow!” When Simon says this to Jesus, he has good reason. Simon is an expert fisherman; he runs a business and knows when and where to catch fish. He has come back exhausted and empty-handed, but Jesus tells him to go out again and put the nets in the water one more time. It seems futile to Peter and the fishermen with him, because they have been out there all night trying so hard and have come back so very exhausted.

 

Yet, when the Master says it, they do it. They know Him and trust Him. His word means something true to them. They have that kind of relationship, and “it was no sooner said than done!” Suddenly there is a breakthrough where there had been no breakthrough. Suddenly there is supply where there had been no supply. Suddenly there is abundance where there had been lack. “Suddenly,” after a long night of nothing, everything changed at the command of Jesus. Their “huge haul” of fish was surprising, abundant, and so heavy that it nearly sank the boats.

 

1. Beloved, have you been “fishing hard all night?” Have you done everything you know to do, but have come back exhausted and empty-handed? I pray that your heart will be open to unexpected wisdom from the Father. I pray that your hard night will turn “suddenly” into abundance and breakthrough!

 

2. How can you open your heart to hearing from God after such a long time of feeling empty-handed? In what ways can you strengthen your relationship with the Master so that you will go out and try again, trusting Him to be true to His Word?

Thursday, July 3, 2014

How To Train Your Dragon: book series review

Am I the only one who didn't realize that the How to Train your Dragon stories were based on books!  My 8 year old son and I came across Cressida Cowell's book series at the library.  The first book was published in 2003 and there are currently 11 books published.  My son and I started with the 11th book (because that is what was at the library) How to Betray a Dragon's Hero, published in Sept 2013.  At the end of the book, the author notes that the 12th book is coming soon, and will be the final book in the series. Check out the book series website howtotrainyourdragonbooks.com.
I was so blown away by the book we read.  It was artfully done with skilled prose and pencil drawings.  The book moves alone quickly, and we always had a hard time stopping at the end of a chapter.  The 17th chapter, Sword Fight, was so wonderful, I took it to work and shared it with many friends.  It was all about what makes a hero, a king, a leader.  It was about hatred and forgiveness, and about identity and what choices we have when someone else has what we want. 
 
The books embody great character and morales, wonderful prose and illustrations, and the timeless epic tradition of books like the Narnia series and The Lord of the Rings.  Now, mind you, they are different in many respects too...but there is a journey across many lands, with multiple types of dragons, and the battle between good and evil.  The hero endures trials and overcomes obstacles, until he becomes more and more the king he was destined to be.

My son is 8 and is able to read the books alone, although I do think he misses a lot that way because of the vocabulary used.  He seems to get more out of it when we read together.  I love the books, so they are definitely appropriate for anyone about 3rd grade and older, depending on reading level and proficiency.

Saturday, April 5, 2014

Helping Kids with Social Anxiety: Giving Them a Role


Some people thrive in a social setting.  They love the people, the celebrations, and joy of interacting with others.  Other people prefer to stick to themselves, and may have a very difficult time in social settings.  When they do want or need to be in a group, they may feel nervous, stressed, and drained.  

I recently had to take my 8 year old son to church with me when I got to lead a prayer service.  There was no where else for him to hang out on that night.  I ended up asking him to be my helper with the "technology" and the music.  I had my ipod and wanted to hook it into the sound system with specific songs playing at specific times.  

This turned out to be a wonderful thing, because I really did benefit from his help with the songs, and he felt very proud and excited that he could contribute.  He did really well in the social setting, even though that would generally be quite a challenge for him if we just showed up and he didn't have a specific role. 

When your kids are going into a crowd, try to think of ways to make roles specific if they like that.  Can they be a helper?  Maybe they can be in charge of opening the door and putting peoples' coats in the "coat room."  Maybe they can help with props for a play rather than being on stage.  Maybe they can help hide the Easter eggs or hand out the Halloween candy.

What have you tried that helps your kids negotiate crowds and parties?

Sunday, March 30, 2014

Spring Cleaning and Autism



Everyone probably has a room or rooms in their house in need or spring cleaning!  Anyone with kids knows that things can collect and build up that really should be sorted through and given away.  A challenge for any family is convincing the kids to let go of some of their stuff and give some away to other children.  

Children in the autistic spectrum can have particular difficulty keeping their space organized and free of clutter because of executive function and sequencing difficulties.  Executive function is a primary difficulty within the autistic spectrum.  This includes abilities such as figuring out how to start a multi-step project, initiating behavior, and attending to both the details and the big picture.  In addition, many individuals in the spectrum are very particular about their belongings in the sense that they may have collections, prefer to arrange certain belongings "just so" while other belongings are on the floor, and may resist change (such as changing the location of an object at home or throwing things out that aren't important any more).

One approach that I use with my son in the autistic spectrum is to go through the house while he isn't home, and gather things that I don't see him playing with or using.  Then I store them in boxes and bags out of site. If he notices something is missing and asks for it, I can return it.  But if months have gone by and he hasn't noticed that something is missing, I give the items away.  

I also encourage him to choose some items to give away. Sometimes his school has a charity drive for example that kids can contribute to.  This is a way to focus on the teaching part about having a generous spirit, why that is important, and how to live that out.  

How do you help your autistic child sort through and give up some of their things?  Do they have trouble tolerating the changes?

Thursday, March 27, 2014

Monkey Birthday Party for Kids

 My son wanted a monkey themed party this year.  The cupcakes are chocolate cake with a chocolate ganache frosting.  Then I made a basic sugar cookie, cutting the batter out around a tablespoon before baking.


After baking, they looked like this:


I assembled the monkey cupcake by putting the cookie on the face like the monkey snout.  I put a dab of white frosting with mini chocolate chips on top for the eyes and drew on the nostrils and mouth with chocolate frosting.  The two ears are mini cookies I found at the grocery store.  I ended up putting a small banana candy on top of frosting for the mouth.




For the gifts bags, I used brown bags and printed off a monkey picture, putting each child's name in the placeholder.  

I added a dab of color with markers and hung some monkeys on the side of each bag.


The inside goodies included monkey tattoos, mini banana candies, a monkey keeper lego, monkey bracelets, and small monkey toys.  

It was a barrel of fun for the kiddos!  Hope your party is fun too.

Saturday, March 22, 2014

Sensory Activities for Older Children

The Occupational Therapist for my 8 year old son has suggested that we get back into some sensory activities to help him with his autistic spectrum symptoms. 

There are many ideas for sensory play for toddlers out there, but not as much for older children.  I decided I wanted to try to integrate sensory activities into some functional tasks... like cooking and bathing for example.  

This morning I made muffins with peanut butter, banana and eggs as part of the ingredients.  I asked him to help me cook.  My idea was to have him get his hands into the batter to mash up the bananas, but he wasn't going for that today!  We will try another time.  I did show him, however, how to separate eggs with his hands just like Bobby Flay!  He let me crack an egg right into his open hand, let the egg whites spill out into the bowl underneath, and put the egg yolk into the batter.  

In his bath, he is experimenting with different textures and senses as well.  He loves the shaving cream play in the bath but is not as keen on the more greasy coconut butter lotions.  Next up...we are going to try an apricot scrub with a light scent and a somewhat textured feel.  

Experiment with your older children, and see how you can integrate sensory experiences into everyday functional tasks!

Wednesday, January 1, 2014

Does Someone In Your House Keep Asking "What's there to eat?"--Try This Great Solution

I can't count the number of times my 7 year old says, "I'm hungry."  And I say, "What do you want to eat?"  And he says "What do we have?"  We, of course, repeat this dialogue several times a day.  

Recently I decided to create him a menu.  I typed up about 20-25 of his most common snacks and meals including several protein based foods, snacks, fruit, smoothies, etc.  

I printed out the menu on our home computer.  I then used my Scotch Thermal Laminator to seal it into a more durable menu for little hands.  

Now, he knows where his menu is located in the house.  I use a dry erase marker to cross off foods I don't have that day (e.g., if I run out of apples) or I add foods that I know we have that aren't on the list (e.g., at Thanksgiving we may have left over turkey).  Then he can tell me specifically what he wants, even though I control what is on the list (offering healthy foods with a good mix of protein and healthy options).  

Who would this help at home?
1. Children
In the case of young children who can't read, try using a picture menu.  You can either make a book of food in picture form (like a trifold menu) or you can print off various foods in picture form, laminate them separately, and use velcro to affix them onto the "menu for the day."  So for one meal, you might affix options of cereal, eggs, toast, etc.  For the next meal, you can affix different foods in picture form. 

2. Individuals with Dementia
Many individuals with dementia have trouble knowing when they are hungry, what they are hungry for, and may even fail to initiate eating during the day.  Some dementias produce specific difficulty with words, expression, or reading.  In these cases, you can use a similar option where you list options for food in words or pictures to give them some control and option, but still assisting them in generating ideas. 

3. Adults Trying To Eat Healthy
If you made a New Year's resolution to eat healthier, you may find yourself thinking, what is there to eat?  You might want to use your cookbooks, websites, and Dr's advice to list some ideas on a menu for yourself.  For example, you might make a "snacks" menu that gives you ideas for healthy options.  

4. Adults with Learning Disabilities
I recently met a few adults who had language disabilities from birth.  They have difficulty generating verbal words and ideas.  They also have difficulty reading.  A picture menu would be a great option in this case as well.   

Saturday, December 14, 2013

Great Fun with Jigsaw App

I really enjoy jigsaw puzzles, but there are some drawbacks to getting one pouring out the pieces on your floor or table.  The pieces get lost, you lose interest in the picture, you get stuck and give up, or it takes so long to complete you have to put it all back in the box undone. 

I recently discovered the Jigsaw Collection HD app from iTunes.  I paid for the 2.99 premium version, but there is a free version as well with some puzzles included.  

The premium version lets you upload any photo you want and turn in into a puzzle, for endless personal puzzles of your choice. You can also buy packs of themed puzzles from iTunes.  



Some nice features are that you can save puzzles you are working on, and have several puzzles in process at one time.  You can choose the type of pieces you want...such as traditional puzzle pieces, waved squares, or flat squares.  You can choose how many pieces are in your puzzle from as low as 12 to as high as 288.  You choose the color of your background puzzle table.  You also have the choice to have the pieces right side up at all times, or rotated in random ways to make it harder.  You can have the app separate all the edge pieces for you and bring them onto the table first.  In other words, there are many ways to make the puzzle personal and adapted to your difficulty preferences!

Sunday, December 1, 2013

Celebrating the Holidays with Special Needs Children

Trees, lights, decorating cookies, shopping, visiting family, school vacation, wrapping and opening presents, singing traditional songs of the season, and church services...

The best things about the holidays, right?

We all have our favorite part of the holiday season.  It usually comes wrapped with childhood memories of what was or what we wish had been.  We try to recreate scenes from Christmas past.  Capturing those great pictures of the kids for Christmas cards.  Surprising people with gifts on Christmas morning.  Visiting Santa and watching favorite Christmas movies on TV.

For children with special needs, all or most of the above may be very difficult and not enjoyable at all.  My dreams for the season are often not my son's dreams.  He is 7 years old and in the autistic spectrum.  Every year, I'm surprised by how much he struggles during the holidays.  Just this year, I spent some time crying at a coffee shop as I took a break from trying to cook for Thanksgiving.

As I try to regroup, these are my thoughts...

1. Anticipation and Surprise
For most of us, anticipation and surprise is what Christmas is all about.  But for my son, anticipation feels like anxiety.  He prefers to know what is coming.  He likes a predictable schedule.  He can seem "off" from before Halloween until after Christmas break.  "Off" could look like meltdowns, crying at small things, wanting to be constantly close to a parent, or wanting to be isolated like under a "tent" in his room or behind a chair.

** One thing we have tried is to ask Joshua if he wants to know the "schedule for the day" even when school is out.  This let's him know what unusual things may be in the schedule, or what usual things are cancelled because of the holidays.  Sometimes we ask him if he wants to draw out or write out his schedule.  Other times, he just wants to hear it. Here is an example of a visual schedule.

**Joshua wants to know what he is getting for Christmas ahead of time.  Yesterday, he and I ordered his gift together over the internet.  Now he feels good that he is getting something he will enjoy, but he doesn't have to manage that nervous energy until Christmas morning.

**You could also develop a social story like the ones at this link.

2. Crowds, Commotion, and Loud Noises
There is a lot more activity during the holidays than other times of year.  Even at his "typical" activities like fencing and school, there are Christmas songs, concerts, and his school even takes all the kids to a store to buy toys for charity.  These activities can be overwhelming because of the noise, scents, bumping, and bustling.

At any time of year, Joshua can be loud and physically active; however, sometimes this is most noticeable when he is actually overwhelmed.  When he is crashing through the house and can't stop, I know he is having a hard time.  There was a time when I thought he needed to "run off" this energy, but now I know that he most often needs help with calming during these times.


**He may need us to set up a quiet place like an indoor tent.  He can go inside and watch videos or play an app on a tablet. Try these ideas for creating a cozy resting place.

**Deep pressure and proprioceptive input can be also be calming and centering.  Try these sensory strategies OR these!

3. Diet

Holidays often have lots of treats, traditional dishes, and a deviation from normal diet.  In addition, Joshua follows a gluten free, casein free (dairy) diet to help manage his autistic symptoms.  Joshua typically does best when he has enough protein and very little simple sugar as well.  We try to cook healthy and organic as much as we can, but still have treats for Joshua at every holiday and special occasion.

**Joshua eats a lot of healthy foods, but he often rejects new or unusual foods.  Many of the traditional holiday foods are out of our typical routine (e.g., most of the Thanksgiving dishes).  While I may be working very hard to make stuffing, gravy, etc. Joshua often wants his usual dishes.  Or, he may ask for holiday dishes because other kids talk about them, but then often reject them when they are on his plate.  This Thanksgiving, Joshua ate coconut milk ice cream and that was it.  He rejected each of my Thanksgiving offerings.  I have to just anticipate that he may want his usual foods; I need to choose which ones I will make in combination with a few holiday dishes for us.  

**We try to really focus on protein and healthy eating, so sugar rushes don't add to his symptoms and struggle.

4. Little Bits at a Time
**We try to enjoy little bits of the holiday at a time.  Our church holds Christmas service during the week before Christmas, so we are able to go to service and then not plan anything else that day.  

**We don't have family in our area; rather than driving 8 hours to see family and stay in their home, we opt for a quieter holiday in our own familiar setting.  

**We spread out his presents across multiple days, rather than opening all the presents Christmas morning in a flurry of craziness.  So, he opens one large present on Christmas morning (of course he already knows what it is) and then across the following days, we dole the rest of the small presents over time.  

5. Take Care of Ourselves

As I was crying in the coffee shop this year, I remembered that taking time to myself is really important.  I can't do it without breaks and a chance to regroup.  So I either need a to find a babysitter, a willing neighbor, or take turns with my husband to get out of the house and breathe.  

Saturday, November 23, 2013

"Close your eyes Mom!": Talking to my Son in the Autistic Spectrum

My son Joshua is 7 years old.  He has been diagnosed in the autistic spectrum.  When he is having a particularly rough day, he may prefer to avoid seeing people's faces or eyes.  He also has a hard time handling adrenaline or strong emotions, even if they are coming from another person rather than from inside of him.  

That is why, there are times when he wants to tell someone something, but he doesn't want to do it face to face, eye to eye, and emotion to emotion.  

I know we all do that sometimes.  Maybe we prefer to email a difficult topic to someone, just for a little personal distance.  Maybe your child likes to tell you things when you are not looking at each other, like when you are driving the car and he/she is sitting in the back.  It tones down the emotional intensity you are having to process from the other person. 

Sometimes, my son will ask me to come under the covers with him so it is dark and we can't see each other.  Then he will tell me what is on his mind.  Or laying in the dark as he is falling asleep...he may say, "Mom..." and talk about something that feels emotionally intense to him.  I have to remember to be very "matter-of-fact" when he tells me something like that.  Whatever it is, he is feeling overwhelmed by the emotion of it already, without my response adding to it.  

How do your kids talk to you?

Monday, July 15, 2013

Does Your Child Have 'Super Powers?": Talking to your kids about their autistic spectrum symptoms


My son is 7 years old and has a diagnosis in the autistic spectrum.  One of the features of the spectrum is that some children and adults can have many sensitivities that feel overwhelming at times.  My son has many sensory symptoms like this: the sun is too bright, crowded places are noisy and chaotic, being touched can feel overwhelming.  The strength of these symptoms seems to be variable through different ages and seasons of life for him.  When he is having a hard day, he has more symptoms.  I remember one season when he was 4 years old.  He was so sensitive at that time that it was hard to function.  He didn't want me to use any of our kitchen appliances because they were too noisy.  Even if he was in a different room with the door closed, he seemed bothered by the noises.  We even considered taking the appliances to the basement! 

One decision facing parents whose kids are struggling is how to discuss the struggles without making the child feel chastised or bad about themselves.  In this case, we started talking to him about his super powers!  He could really resonate with this concept.  We talked about how not everyone could see and hear what he could.  His super powers (hearing, vision, etc) could be really valuable and wonderful (e.g., he can pick out details in a picture that no one else sees).  We also talked about how his powers can make life hard or uncomfortable.  

One of our goals was to teach him how to monitor how his powers were doing that day.  We would say, "Are your super powers bothering you today?" or when he could see or hear something we couldn't, we might say "Ah!  Your super powers are turned on.  I didn't even notice that noise."  Then we would ask him to start monitoring his own powers and telling us what he needs that day.  We would say, "If your super powers are really strong today, what can we do to make it feel better."  We would start to teach him options for coping with really strong inputs.  For example, we might suggest sunglasses outside.  I would warn him before I turned on kitchen appliances so he could decide whether he wanted to put his hands on his ears, go upstairs to his room, etc.  

He really responded to the concept of super powers having good aspects as well as challenges.  And he also started monitoring how he was doing on a certain day, and letting us know (with prompts).  Pretty soon, he could start to choose from options about how to cope on that day. 

What super powers do your kids have?  How do you talk to your kids about their strengths and challenges? 

Saturday, July 6, 2013

Easy to Read Books on Child Development: Series by Louise Bates Ames

Louise Bates Ames was an American psychologist specializing in child development. She worked at the Yale Clinic of Child Development and hosted one of the first TV shows on child development.  She died in 1966. She published a series of easy to read books on child development by age, one for each year from 1-9 and then a book about ages 10-14.  Although dated in some ways, the book series is a nice resource for parents wanting to know about temperament changes and how this is impacted by developmental levels. 

Because my son had some developmental symptoms, I had trouble knowing what was just typical development and what was a struggle connected with his autistic qualities.  These books were a quick resource that helped me put his changing interaction styles into perspective.


 Excerpt from Your Three-Year-Old:  Just as the tides have their rhythms, so does human behavior have its own predictable rhythms.  As the child grows older, "good" ages alternate with "bad"; times of equilibrium alternate with times of disequilibrium; and periods when behavior tends to be expansive and outgoing alternate with periods when everything seems to be pulled in.

I personally appreciated having a resource that talked about the developmental stages of temperament, rather than just focusing on cognitive or motor goals for each age.  Some have commented that the books don't contain much information or that they are dated.  I would say that is probably true, but the dated portions don't negate the developmental gold in the pages, and the fact that the text is not complex is a plus for me.

Tuesday, June 25, 2013

A Full Fridge and Nothing to Eat: How Executive Function Impacts What We See Right in Front of Us.

We have all had the experience of looking at a full fridge and not being able to find anything to eat.  Sure, part of it is a lack of decision or trouble finding something that we are hungry for.  But a lot of it has to do with executive function. 

Executive function is a cognitive ability impacted by the center and the front of the brain.  It involves many attentional abilities such as sorting through stimuli, carrying out multiple steps to complete a task, paying attention to detail, organizing our life, keeping track of what we are doing, and multi-tasking.

When we are faced with a visual field filled with stimuli (e.g., a refrigerator full of food), our brain needs to sequence and sort through every detail of the field and tell us all the meaningful things in front of us.  If we have trouble with this part of executive function, we can see "a bunch of stuff" but the details get lost.  This is also why you might find 5 open jars of mayonnaise in your fridge.  Someone missed the detail in the fridge, and opened a new container...multiple times!

This is true for our kids too.  Take a look at this visual field--

Have you ever heard your child say "I have nothing to play with!  I'm bored, I have nothing to do!" 

Or do they stand in their room when you ask them to clean up...looking dazed and say "I don't know how!" 

This is likely that same executive function problem--Here are all these stimuli!  What do I do now?

I find that my son plays with more of his toys when his playroom is organized than when all his toys are out in the open.  You would think having all the toys visible would make for more ideas of what to play.  But no--it only makes the visual field more confusing and actually less noticed.  "Where do I start.  What do I play.  What should I do?" 


Recommendations:
1. Realize this is a brain function.  Everyone has strengths and weaknesses with brain functions, including executive function abilities.  What is easy for you may be challenging for someone else.  Also, when we are fatigued or stressed, our ability to attend to detail may be even harder.
2. Try organizing things and making less things visible.  Sometimes when less toys or food are visible, people feel like there is actually more to do and more to eat.