Autism Spectrum: Your emotions overwhelm me!

Whether you are in relationship with a child or adult in the autism spectrum, you may not realize how sensitive they are to other peoples' emotions.  They may misinterpret them, make wrong conclusions about them, not understand where they come from or what they are called, but many individuals with ASD (autism spectrum disorder) experience them quite strongly.  

Consider this, have you ever had the experience of having something really bad happen to you, and many people run over to you and say how horrible it is, how sorry they are, and what can they do?  If so, you probably have a sense of how it feels to have trouble taking in and balancing emotional input from others.  You might think, "Oh great.  Now I have to deal with my own stress and sadness, as well as the sadness of other people!"  Or maybe you watched a sad movie on TV and you have trouble regulating all that emotional input from the program without feeling the impact for hours or days later.  It's a lot of emotion to "take in" and do something with. 

Individuals in the spectrum can be easily overwhelmed by the emotions of others.  If they are having a conversation with someone who is emotional, they may shut down or feel like leaving.  If their family members are fighting and crying, they are likely to feel a real struggle with this (maybe even moreso than the individuals in the argument).  If you are a spouse or parent interacting with these individuals about a difficult topic, they may miss much of the content of your communication because they are overwhelmed trying to regulate the emotion of it.  I recently spoke with someone with ASD who said, "This is so true... 200% true!!"

Here are some tips to recognize and overcome this barrier:

• Recognize that your need to get your emotions out may be just that... your need.  It may not serve the actual communication or help the person you are connecting with.  If it is your need, but overwhelming to the other person, find other ways to let your emotions out (e.g., journaling, exercising, bubble bath, music) while still communicating thought content to the other person.
• Recognize that adding emotional content to your communications DOES NOT make them more compelling to the other person, but rather decreases their effectiveness.  If you want to make sure you're getting your point across, decrease your emotional output rather than ramping it up for emphasis. 
• Commit to a calm home environment as part of the overall picture of helping your loved one balance their experiences (e.g., emotional, sensory, activity, etc). 
• Give the other person time to settle their emotions before talking through the emotional topic.  They may need space, quiet, and time before feeling ready to continue talking about something.  

Teaching Emotional Control Strategies to Kids with Autism

I recently wrote a blog entry about why losing games can be overwhelming to individuals in the autism spectrum.  Now for a few ideas about helping kids gain emotional control.  These strategies are one step toward calming and teaching emotional regulation.  Consider yourself and your child to be a detective about what helps in what types of situations. 

• Catching the Meltdown Before It Happens

It is often difficult for an individual in the spectrum to know how upset they are becoming or may become in certain situations.  As the parent of a young child, you may need to watch for signs and triggers ahead of time and teach your child more about his triggers and emotions.  You might say "You are angry right now" or "It has been a long day.  You need some quiet time."  You may pay attention to your child's schedule to make sure there are not too many difficult things in one day (e.g., don't schedule a school test and a dentist appointment the same day).  

It can be helpful to use pictures to help your child identify how he is feeling (e.g., he could point to green for good, yellow could be "watch out, getting stressed" and red could be "feeling completely overwhelmed").   
  

• Using Sensory Strategies for Calming

Once your child is overwhelmed, using verbal reasoning and requests is often very difficult and unsuccessful.  It is hard for her to think about how to comply with your commands (e.g., "Get a grip, it's not that bad" or "Stop crying, this is embarrassing).  It is also very difficult to attach words to the experience.  She is likely to be unable to verbally explain what is happening (e.g., "Why are you so upset!  What happened?").  Instead, you could use physical strategies that involve the senses to help her body calm.  Some strategies might include using deep pressure (e.g., bear hugs, pillow sandwiches with your child in between for a nice squeeze, or a weighted blanket), vestibular input (e.g., a ride in the car, being pushed in a swing), visual input (e.g., repetitive visual things like a lava lamp), auditory input (e.g., ear phones with nature sounds or favorite music), joint input (e.g., carrying something heavy, pulling on something), or smells (e.g., essential oils like lavender).  This can help with calming, even when the individual can't use thoughts or language.

• Time Out for Calming Instead of Punishment

You can teach the child that when they begin to feel overwhelmed, they may need to regroup in a quiet space before trying to solve the actual problem.  Having time away from chaos and strong emotions, can help him let go of some of the stress before interacting with others again.  Some separation can be initially helpful.  In fact, for individuals with ASD who are older, I have even seen people decide they do better speaking to others about difficult things using email rather than face to face.  If this is a strategy decided on ahead of time that actually helps introduce helpful distance and prevent loss of emotional control, it may be very helpful. 
  

• Have a Calming Strategy that you Practice Ahead of Time

Giving your child direction during a meltdown is often more overwhelming than calming.  However, if there is a calming strategy that the child knows about ahead of time, she can learn to use the strategies piece by piece.  For example, one strategy might be to use the breath for calming, like blowing bubbles or blowing LEGOs across the room with a straw (sometimes blowing out is more calming than deep breathing, especially for anxiety).  The individual may have a basket of things for calming (e.g., squeeze balls, ear phones with music, heavy blanket) or may have a binder with pictures of strategies in it (e.g., pictures of swinging or meditation) that they can then go and participate in.  

You will find that thinking about strategy rather than punishment is more effective and comfortable for you and your child!

Why Losing Can Lead to Meltdowns in Autism

All kids have trouble learning to lose with grace, but for children in the autism spectrum, losing can lead to an all out meltdown.  A meltdown is different from a tantrum in which the child is in control of his behavior but is acting out to achieve a goal or manipulate an outcome.  A meltdown is the moment at which someone is entirely overwhelmed by emotion and decompensates before your eyes.  The emotional moment may last a very long time; children with autism can take even hours to recover.  

Many children with ASD (autism spectrum disorders) have meltdowns in response to losing a game.  Why?  Here are several reasons:

•  Uncertainty:   Individuals in the spectrum often want things to be routine and predictable.  They have difficulty not knowing the outcome of something ahead of time.  For some kids, if there was a predictable pattern to winning and losing (e.g., I win then you win then I win...), the individual would do better.  But that is the point of the game for most people; the outcome is uncertain and captivates our attention.  What is going to happen?!  For the individual with ASD, the uncertainty is stressful.
• Concrete: Good vs Bad --Concrete thinking is common in the spectrum as well.  Your child may categorize everything into good or bad, or other black-and-white categories.  As my son was growing, he would ask the same thing of me ("Is that person a good guy or a bad guy" or "Is that a good word or a bad word").  It is difficult for your child to, on the one hand, know that winning is the object of a game (no matter what adults say to the contrary) and also realize she is either a winner or a loser, good or bad.  When she uses all her efforts to get into the "good" category and fails, this is overwhelming.  
• Fixed Beliefs --Many individuals in spectrum fixed beliefs that have no clear basis in reality.  They may firmly believe with all their being that something makes the team that is playing good or bad.  For example, they may be extremely attached to the blue uniforms of a team on television, and melt down if the blue team doesn't win.  I have heard some kids say, "I don't know why, but I just feel like it is really really important for the blue team to win."  It is common for people in the spectrum to be unable to distinguish what is "really important" and what is not. 

This leads us to the topic of Emotional Control.  You can think of emotional control as part of the overall concept of executive function which is impacted by the center and front of the brain.  For a good description of emotional control, see Dr Dawson and Guare's descriptions in their books at Smart but Scattered Kids.  Executive function is a significant difficulty for individuals in the spectrum, and emotional control is a big part of that challenge. 

People who have emotional control difficulties may have different manifestations.  In the presence of overwhelming situations,  they may:

• Shut down (withdraw, lose their words, freeze, be unable to act)
• Act Out, Explode, or Meltdown (pushing someone away, crying, yelling)
• Become very anxious (significant fear, worry, and upset)

Because they are less able to manage their own emotional and physical experiences, they often become overwhelmed by emotion and unable to function appropriately through the challenges.  

It is important to understand that, for these individuals, the difficulty managing emotion after losing a game has a neurologic base and cannot be generally managed hearing someone say "stop it" or "don't be a cry baby." 

Some ideas for managing these situations coming up in my next post!

Holding onto Treasure: Luke 2:51 devotion

Excerpt from Soul Cries devotional
*2013 National Indie Excellence Award Finalist*

Encounters

Luke 2:51 (The Message)

His mother held these things dearly, deep within herself.

In this scripture, Mary is described as soaking in all that she has heard and seen as she journeys with Joseph and Jesus through God’s plan. She has encountered an angel, interacted with shepherds, and seen wise men kneel before her as she held her small son Jesus. She has encountered Simeon and Anna in the temple and heard their blessings and prophetic declarations about identity and destiny. She has watched and listened to it all. She has soaked it in and kept it all deep within her heart. She would need it all in coming years, when her son would be beaten and crucified, and the hopeful future she had expected would seem dead.

In this life, we are invited to have encounters with God. There is great wisdom in treasuring these encounters and being a good steward of them in our hearts and minds by writing them down and calling them to mind. Each encounter is a gift to us. We should treat them all as treasures, golden and shining jewels. When God sees that you can receive an encounter, word, or promise and be able to steward it, He sees that you can steward more. Can we hold on to a word or promise for years and years, even when our circumstances seem the opposite? Are we able to hold on, steward, and treasure things deep in our hearts? Mary knew the importance of holding on to treasures and not letting them drop to the floor when “normal” life returns.

1. What has God given you that you have been able to steward for years, deep in your heart?

2. Have you had encounters with God, received words of encouragement, or had experiences that need to be resurrected in your heart and mind? How can you bring them to mind again and carry them in your heart today?

Nerf Birthday Party: 9 Year Old

When my son told me he wanted a nerf birthday party, I immediately began thinking of games and targets we could assemble around the house and yard to make it fun.  He then told me that he didn't want any of that... he just wanted to play nerf wars with his friends... no gimmicks!  OK.  But he also let me know that he wants the birthday to feel special and fun.  My assignment... to make a nerf party that was fun but not gimmicky!

I ended up ordering safety glasses for the shooters in a variety of colors.  I also printed out "target" symbols on colored paper stock, cut out the targets and arranged them on the gift bags and table.  The gift bags also included a bundle of "ammo" and "gunpowder (Pixi Stix candy)".

Then I bought some yellow streamers and put them around the house like Caution police tape.

We had an array of guns and ammo, and the kids also brought their own favorite nerf guns as well. The cake had 9 nerf bullets arranged like candles (I put a toothpick in the cake and then put the bullet on top of the toothpick so it would stand).

Such great kids and a great party!  It felt just "grown up" enough but still fun, festive, and ... just a little bit crazy.

Glimpses

Excerpt from Soul Cries devotional,

copyright Regan 2012

*2013 National Indie Excellence Award Finalist*

 

Glimpses

1 Chronicles 17:16-17 (The Message)

King David went in, took his place before God, and prayed: Who am I, my Master God, and what is my family, that you have brought me to this place in life? But that's nothing compared to what's coming, for you've also spoken of my family far into the future, given me a glimpse into tomorrow and looked on me, Master God, as a Somebody.

This passage makes me smile. How human David’s heart is as he shares his awe of God. He stands in awe of a God who is personal, intimate, and works for the good of His people. This God calls us into life with purpose and destiny. His words and plans propel us into the future. His gaze is on us; He sees us and knows us like no other. How incredible that we have a God who speaks over our families far into the future. Not only does God propel us forward with good purpose, but He also gives us glimpses into tomorrow. He looks on us and tells us who we are.

I pray over you right now, reader. I pray that you will have glimpses into the tomorrow of God. I pray that you will hear what He speaks over you, your children, and your family. I pray that His words over your future will fill you with faith, confidence, and awe. May you know who you are, truly, deeply, and eternally.

1. Have you heard God’s heartbeat over your family? Pray that God will speak to you about His heart for your household. Pray that you will hear and see His words of purpose concerning the future of your family.

2. Journal about a time when you heard God speak of your present or future. Did you see a glimpse of His plan? How did your feelings relate to David’s feelings of awe?